Hang Tough

Yesterday was pretty uneventful. Sylvie's electrolytes (think Magnesium, Phosphorus, Calcium, Sodium) were still a little off but getting slightly better. No fever since Friday at 8 pm. Michael and I had Yankees tickets but in anticipation of the game being postponed because of rain, we changed our plans and went to the city for brunch at Cookshop. Every time we go we sit at one of two tables. It never fails. I was happy to see that they moved the rotisserie from view because, I have to admit, I do not like watching a rabbit spin around on prongs while I eat my non-meat fare. Last time we went, Steve Martin was sitting in the booth behind us. Our friend Pam's daughter was mesmerized because she was obsessed with his family-friendly movie "Cheaper By the Dozen." The time before that Adam Schlesinger from Fountains of Wayne & Tinted Windows occupied the booth. Yesterday was so packed however that there was no way to notice anyone besides the twin men in their late 40s with close cropped silver hair and LONG silver beards and hoop earrings. If they were not brothers, then it's even more strange that two guys would go through such efforts to look absolutely identical.

Anyway, Ann and John babysat Sylvie in the hospital although she slept from 12:15 until around 5 pm.

I realize this is a teaching hospital but sometimes it gets exasperating hearing the diagnostic tests and such that the residents want to order up in the morning only to have the attending pediatric oncologist cancel it. For example, the brand new resident suggested to Michael yesterday morning that Sylvie's electrolytes were caused by poor nutrition and they would consider putting back the NG tube. Very upsetting to us both. Two hours later, when Dr. Flug came by, she said that in her opinion the electrolyte problem is entirely caused by the Cis-platinum chemo. Not to say if Sylvie was eating food as opposed to sucking butter and maple syrup off of french toast, that her levels would be slightly more normal. In fact we are very clear with Sylvie that if she doesn't eat, the tube will go back. Conversely, the tube might have to go back for 1 night to give her all that barium prior to Friday's CT scans so we need to change our story.

Fast forward another hour and Dr. Harris called me. He was leaving for a European vacation through May 12 and wanted to check in. He also reiterated that Sylvie's electrolyte imbalance is Cis-platinum related and as long as she's in the hospital being monitored, it's fine. He suggested Michael and I go to Wilmington on Tuesday without Sylvie to meet with Dr. Dunn. Since we have to make a decision as to who/where Sylvie's surgery will be performed over the next 3 days or so when he is in Europe, Dr. Harris said we should email him with any questions. I told him that he was part of the decision and we'd do so without being intrusive.

I think the earliest Sylvie can be discharged is Wednesday with her final dose of Round 4 chemo (Vincristine) on Thursday and CT scans on Friday. My gut instinct is telling me they will not let Sylvie go home until Friday, however, based on the last round, CT scans, etc.
More later.