Monday, November 29, 2010

A broken heart still beats




The broken heart still beats.
One year. 365 days. Without Sylvie. No fights about wearing costumes to bed. Or to preschool. No homemade ice pops in Hello Kitty molds. No princesses, My Little Pony or Barbie. No Laurie Berkner, Dan Zanes, Suzi Shelton, “I Love a Rainy Night” or Max and Ruby episodes on Michael’s iPhone. No birthday candles. No Chanukah candles. In July. No Sylvie kisses or embraces. No falling asleep with Sylvie literally clinging to our faces.

The past year has been surreal. Unreal. But real. There are many tragedies that can happen to you which you can undo, grow up or out of or just plain fix. Unfortunatley, losing your child is not one of them.

Hundreds of well-meaning strangers asking us the inevitable, “Do you have kids” or others ignoring us at parties thinking we can’t contribute to conversations pertaining to parenting. Unavoidable. Well, easily avoidable—sometimes we just cancel our plans and stay home! When Michael and I are together and “the question” is not far off, I usually step forward and jump to with a, “Our daughter passed away, she would have been four” just so that Michael doesn’t have to do it. When I became pregnant, ten times more people asked. Some even acted offended, like I ruined their day when they innocently asked me if we had other kids.

Sylvie’s not here in person and it’s just not right, not fair to her or us or you. We feel her presence often sometimes masked in bizarre coincidences and other things which we keep private because it is just that—private-- or you’d think we’re just plain crazy.

Our family and friends continue to be incredibly supportive. Like when we ask them who exactly is going to be at a potluck dinner because there are a few people who make us incredibly uncomfortable or perhaps we just don’t feel like being around more than eight, ten or fifteen people that night. And I’m sure sometimes our eyes glaze over when we see their kids. Maybe we even roll our eyes unknowingly when they complain about their kids or make bullshit excuses to avoid spending time with their children.

Michael and I go to the cemetery often. We were there yesterday together, usually we go separately. I’ve talked to Sylvie about how much I love her (more than I have ever or will ever love anything in the world is how I usually put it) and then about her baby brothers. They don’t really look like one another yet they each resemble her in remarkable ways. I think Sylvie might actually have liked them, contrary to what I initially believed. Michael planted a princess holly bush and a teeny tree yesterday and I brought a cloisonné Nutcracker ballerina ornament. Hopefully the Jewish cemetery police will not discover it.
Today is Michael’s birthday. Our weekend and our morning has been filled with mixed greetings. I’m glad our friends and family are acknowledging the day. I really liked that our friend Rohit referred to Sylvie as “our princess,” because she was so special to so many of us. It’s also important to me for Michael to have some semblance of a birthday. Especially since we are going to revisit this annually.

I went to sleep last night with a very heavy heart. I have been so extremely tired that I look forward for my head to hit the pillow when I can say my nightly prayers and conversation to Sylvie shortly before falling into the deepest sleep imaginable. So deep the baby nurse and Michael often can’t wake me up!

Today was also filled with a trip to the surgeon for me. One day when the twins are old enough to understand, like when they are twenty, I’ll explain to them just how difficult it was for us to make them. Then finally I might not be horrified by photographs of my huge pregnant twin belly in which I can point out the hernia that I endured for the sake of procreation! Then I’ll tell them that I was terrified the doctor might tell me that, in order to appease my vanity and fix the hernia, I couldn’t have more children which would just break my heart because in as much as I know I cannot recreate Sylvie, the notion of trying to create another little girl in her image is something I truly must do in order to go on. Not the case, the doctor explained to me the process to fix it now and also should I have another baby. I used to be scared of all things related to anesthesia but after the past twenty four months, I say bring it on. Bring on the IVs, operating rooms, monitors. Michael on the other hand, breaks out in a nervous sweat whenever he sees medical apparatus. Sylvie still braved far worse than any of us should ever have to go through and it never slips my mind.

Just like I made for Samantha, Sylvie’s best friend forever, I am making a photo album for my niece with all the great photographs of her and Sylvie. In some, they look like old friends sharing a private moment whether they were complimenting each other on their Snow White and Dorothy costumes, fighting over marbles, sharing pumpkins, getting naked in the kiddie pool despite our protests or maybe just sharing a secret.

I am going to go back to the cemetery today although I feel connected to Sylvie more at home than there. There I will think about finality. I will think about what a cruel fucking world this is. I’ll question how one year ago Sylvie opened her eyes to look at Michael one last time and nodded at him as if she understood or had a conscious choice in the matter. I’ll think about all the doctors & nurses who knew Sylvie who stood there crying, too. Our friends and parents nearby. Her pink princess dress with matching panties—a birthday gift from Jette—and rainbow blanket we brought from home to the ER that day. Then I’ll think about the pink plaid taffeta dress from Hanna Andersson I was saving for Passover & Easter with Sylvie’s favorite pink cardigan and black “Chanel” party shoes that she’s wearing now.

And tonight, if Spencer & Ryan actually cooperate, perhaps we will try to go out and celebrate Michael’s birthday. I know that before he can even make a birthday wish, Sylvie will already have blown the candle out.

Tuesday, November 16, 2010

Forgot to Post

(I meant to post this the day before the twins were born…)

October 10, 2010
Tomorrow’s the big day, when Sylvie’s twin brothers say “Hello World.” I’m expecting a lot of tears. Everyone is. We have a football team of doctors, nurses, midwives ready to help us in the O.R. many of whom at our very special request. Knowing what an emotional day it will be for us, I talked to my doctors and the folks at the hospital several times to go over our comfort level, our discomfort level and everything in between.

On Friday, Michael and I met at the cemetery to plant some hot pink mums and bring a pumpkin painted with a glittery Hello Kitty. I planned to read “The Polar Bear and The Rainbow,” one of Sylvie’s favorite books. We first found it on the book cart at the Reuten Clinic which became our immediate destination after checking in. I’m sure I’ve blogged about it before. It had one of those ‘Sponsored by a holiday donation from XXXX at Barnes & Noble,” labels so if you are ever wondering what happens to the books you purchase during the holidays with the intent of donating, please know it’s a very good thing to do. Anyway, one day the book was missing. This was a problem of big proportions. Perhaps we left it up in PedOnc. Perhaps we returned it to the pediatric library but it was nowhere to be found. They didn’t have it at Bookends or at Barnes & Noble, so I ordered it from Amazon. And wouldn’t you know it, those cheapskate publishers did a second edition printing with far less glitter on each page. So we “made lemonade” and Sylvie put some of her favorite stickers on each page of the book. I admit, I hadn’t opened it for a while so I was touched to see her personal contribution to the book. I was, however, too choked up to read it aloud so I read it to myself while Michael sat next to me. He said that the name “Benjamin” was on his baby name list because that’s the name of the polar bear in the story.

I have had many conversations with Sylvie about her becoming a big sister and our having twin boys. I’ve thanked her for sharing her bedroom and apologized for painting it blue. Pity the poor person who tells us that our babies are “special” for having a big sister who is an angel. I will lose my proverbial shit. I cannot wrap my head around it. How on earth do we go on loving the same way we did before, not being terrified at every bump, fever, cough, sniffle and tummy ache? I realize that many parents, when they have subsequent kids feel guilty about sharing their love but essentially, your heart just continues to grow and grow. This is different though. We have no closure. No answers. And no Sylvie. I’m so defensive when someone who doesn’t know about our family asks me if our daughter had been ill. I am quick to say that she had cancer but that she was CURED.

I think the fall will forever be pretty miserable in our longing for Sylvie. I recalled at the cemetery that it’s almost Halloween and that last year, Sylvie wore her new Cinderella costume to school and held Miss Amanda’s hand as they led the parade. I have a movie of it. A movie that our au pair Caroline shot while Michael and I hid because Sylvie would not have wanted to proceed had she seen us in the crowd. One of Sylvie’s friends was also dressed like Cinderella so it was cute seeing the two of them in their sparkly blue dresses. I have boxes of Halloween decorations—Sylvie hated them because they were scary but they were pretty cool. I acquiesced last year and bought sparkly fall decorations instead because she liked them better. We also went to Florida in November to celebrate Sylvie’s recovery and had the most glorious time. We’ve since brought some of the shells we collected on our trip to decorate her headstone. I don’t wish losing a child on anyone but really, the business and rituals one must do at a cemetery would make your head spin. When I bought the Hello Kitty pumpkin, I considered saying something to the cashier at the garden center but really, what is there to say?

My dad asked me again last week, as if we haven’t had the conversation a LOT, if we would be having a bris ceremony for the boys (NO WAY). Even my obstetrician has asked me repeatedly and mirrored the rabbi’s sentiment of it being an “important” one time only Jewish life event of an eight day old baby boy, let alone two. I can’t help but understand where they are coming from and I have the utmost respect for all of them. But really, there is no way that any of them can look me in the face and not read my mind—I have found very little solace in faith. Pardon my language, but I could give a flying fuck about a bris.
So tomorrow is a very big day. I have a playlist ready to go. A couple of the songs remind me of Sylvie. They might even be bummer songs but they make me feel better. When Sylvie was born, I had intended the Simon & Garfunkel song “The Only Living Boy in New York” to be playing but let’s just say that nothing went according to plan! Here’s what’s on the list tomorrow in no particular order.

Bitter Sweet Symphony The Verve
Come Home Angel Dan Wilson
I've Been Waiting Matthew Sweet
Fall On Me R.E.M.
100 Years Five For Fighting
The Only Living Boy in New York Simon & Garfunkel
Little Wonders Rob Thomas
The New Year Death Cab For Cutie
Lights Are Changing Mary Lou Lord
Soul Meets Body Death Cab for Cutie
The Long Way Around Dixie Chicks
Champagne Supernova Oasis
The Drugs Don't Work The Verve
La Cienega Just Smiled Ryan Adams
Easy Silence Dixie Chicks
Tiny Dancer Ben Folds
A Long December Counting Crows
Fade Into You Mazzy Star
Crazy About You Whiskeytown
Feeling Good Robinella & The CC String Band
Jacksonville Skyline Whiskeytown
Home Edward Sharpe & The Magnetic Zeros
Ooh Child Beth Orton
She Don't Care About Time The Byrds
Heavenly Day Patty Griffin
This Will Be My Year Semisonic