Adventures in Nursing

Sylvie's home- Yippee!
Dottie the kick-ass home care nurse came over to teach us our latest adventure in nursing: TPN.
Michael has to stay home from work tomorrow just to deal with all of it. I'll be home Friday. Sibel's here thank goodness but it would be totally unfair and inappropriate for us to even ask her to learn the wild ways of syringes, Heparin, pumps, et cetera. This is tomorrow's schedule:

5:00 am Fortaz (Intravenous)
8:00 Magnesium & Vancomycin (Oral)
9:00 stop TPN, disconnect pump, Hep lock, clamp, "etc."
12:00 pm Magnesium & Vancomycin (Oral)
2:00 Fortaz (Intravenous)
3:30 PHYSICAL THERAPY
4:30 Magnesium & Vancomycin (Oral)
5:00 Neupogen shot
8:30 Magnesium & Vancomycin (Oral)
11:00 Fortaz (Intravenous)

This is our rough schedule for the next two days and it's nuts. Luckily Sylvie has turned a new corner and actually tries to help us clean the lines. She tried to help Nurse Melanie today admister her chemo, yikes!

Sylvie is due back at the Reuten clinic on Friday for labs and hopefully her counts will have started to climb. Her ANC was zero yesterday. Today was a little better than zero.

Sibel watched Sylvie (Catherine & Sammy came over to play) so Michael and I could practice yoga. I really needed it tonight. Needed to rest my mind that can't stop thinking that every minute of the day, I am forgetting to administer something to Sylvie. It seems like such a short time ago that we got nervous giving her two consecutive doses of Tylenol which was a rare occurrence and she'd never taken any antibiotics whatsoever until this whole debacle happened.

Ending on a warm fuzzy, Sylvie gained 1 kg in 6 days!!! She weighs 10.2 kg which is 22.44 lbs. Despite being a Hair Club for Men candidate, albeit the cutest HCFM candidate EVER, she really looks great.