The news I was waiting for all day long: Sylvie's ultrasound didn't show anything [more] abnormal than we already know. Whew. Pancreas, Gall Bladder, Kidneys all good. Arteries all good. We're going to another ultrasound of Sylvie's heart on Monday but it's not a big deal. When her hemoglobin is low, it creates a murmur and since she has this funky strep infection (officially called 'granulocatella'), one can never be too cautious. While Sylvie was screaming GET OUT to the infectious disease doctor he was able to shine a flashlight in her mouth and see the cause of her non-eating and pain-- mouth sores. Typical with chemo. Dr. Rosen had me get something called Traumeel but I can't even get Sylvie to drink water let alone drink 5 drops of this stuff. Will try again tomorrow.
So for now Sylvie has the mystery fever, wierd infection, low platelets, no white blood cells and of course, cancer.
I asked her Team the million dollar question: when can we go home and they said, "YOU can go home anytime" and laughed. So basically until Sylvie runs a normal temperature for several days in a row, no going home. She can't even leave the hospital room I'll be bringing my blanket back tomorrow.
Sylvie's platelets were at around 45,000 today. In order to start round two of chemotherapy next week, they need to be between 75,000 and 100,000 on their own (i.e. without a transfusion). And her white count needs to be a little existent too.
I started practicing yoga in the family locker room/laundry room because except for me and the mom, Donna, two doors down, no one even knows it's there. I'm sure at some point I'll scare the heck out of someone and vice versa.
Sylvie, my parents and I tried to play some princess fishing game meant for kids 3 and up. None of us were able to fish out even one 'crystal' although Sylvie thought it was pretty neat. Then she moved onto the Princess dominos ("bominos" according to Sylvie). If you had to guess what we're doing now, you're probably right (Disney 'Princess Stories').
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Just received the link to your blog and wanted to let you know that we are thinking of you all. Please give Sylvie hugs and kisses from Megan's Aunt Barbara and Uncle Jimmy. Our prayers and love are with you.
ReplyDeleteBarbara and Jim