Saturday, February 28, 2009

No News is Good News

Sylvie's doctors said she'd feel crappy for about a month. It's been 18 days but we are anxious to see the silly, happy, crazy Sylvie that we know and love. Don't get me wrong, we still love the bossy, sleepy Sylvie but it's really hard to watch and experience day in/ day out.

After being at the hospital for about 2 days straight, I went to yoga this morning, dedicated my practice to Sylvie getting well, cruised home to see my furry friends and then back to Hackensack. Within 5 minutes of arriving at the hospital, I fell asleep on my couch bed for an hour and half. Note to self: Must eat at regular intervals.

I'm playing Fountains of Wayne "Hackensack" right now just because a). I like the band and b). There aren't too many songs called or about Hackensack. Not my favorite FOW song but nice melody. I love the sweet "Valley Winter Song" because it reminds me of Vermont and we won't be back for a long time I imagine.

The good news about Saturdays is no visits from infectious disease doctors. No more reminders about bacteria, fevers and infections. They're pretty nice despite the altercation over Sylvie not having received a chicken pox vaccine. I've had at least 5 conversations with the hospital staff, Sylvie's pediatrician Dr. Rosen and the compounding pharmacy over her new and improved sugar free raspberry goo but somehow the hospital pharmacy and new resident waited until after 6 pm to double check the dosage. Therefore, they'll have to torture Sylvie into taking the caramel version which she has decided to hate. One of the nurses, Katie, said the only things the little kids can control is what goes in their mouths. That makes perfect sense.

All of the residents are changing over so we have a new group of eager young doctors (I feel so old!) checking in on Sylvie and facing her wrath. They are all super nice. Sylvie's hemoglobin is still around 8 (should be over 11) but her magnesium is still stable and platelets are 135,000. Get used to hearing about platelets because that's the name of the game. Two days ago, they were only 45,000 which the nurse, Jessica, is still pretty good for Floor 5E officially called Pediatric Oncology and Hematology.

There's a little boy who just turned two who zooms around the floor all day long. He's as bald as Elmer Fudd and full of energy. I can't wait for Sylvie to be as energetic although the Sylvie looking like Elmer Fudd part is hard to digest. Michael got really sad about that today.

Not much to report except that Michael's mom, Ann, is staying at the hospital tonight so we can have a night at home. Was going to have a Scrabble rematch with Kitzchy but I need to go to bed soon.

4 comments:

  1. I'm glad you started this blog. It gives Mike and I a chance to check in with you all and Sylvie's treatment. Please let us know if you need anything and give that princess a kiss from us both. xoxo
    You are in our thoughts and prayers everyday.

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  2. Thinking about you guys, love John & Meredith

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  3. Hi Audra,
    I don't know how the feeding tube concoctions are coming, but I was wondering if Happy Baby (froz. organic baby food) would help. I can't imagine you have too much time for boiling and pureeing. They have nutritional info on the website - www.happybabyfood.com - and I can try to connect you to their nutritionist if it helps. take care, jodie

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  4. Jane & Georgia send hugs...
    www.brooklyntwins.com
    :) :)

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