and as a mommy and a daddy. It has also been my privilege to call her my grandchild, if only for a little more than three years. Most of you reading this honored her by attending her memorial service. I did so much want to utter my parting words to Sylvie as they would not be falling on deaf ears, but would have been absorbed by her bright and receptive mind. I could never have finished the first sentence without becoming incoherent so I had Rabbi Wylen say them for me.
But I want this to be a permanent testimonial to the bravest and most beautiful child to ever grace this earth.......
"To have only been with us for 3 years and 200 days, but to have touched so many lives, is a truly remarkable accomplishment for such a little princess. Her touch melted my heart - her words brought a smile to my lips - her personality won you over - her presence made you love her. Sylvie will always be remembered.
Sylvie indured and overcame a multitude of desease, sickness, complications and pain. The strength of that little body should be an inspiration to all of us. Maybe it was the princesses that Sylvie loved and adored that gave her strength. Certainly it was the power of stickers that sustained Sylvie.
I am so fortunate to be left with one lasting memory of her little arms wrapped around my neck while she fell asleep on my chest. And now she sleeps forever - no more tubies - no more needles - no more machines - no more medicines - no more probes. Sylvie can finally sleep in true peace".